Mapping Connections: An understanding of neurological conditions in Canada

The National Population Health Study of Neurological Conditions

A partnership between Neurological Health Charities Canada, The Public Health Agency of Canada, Health Canada and The Canadian Institutes of Health Research.

Mapping Connections was developed and managed as a unique partnership between the Government of Canada and Neurological Health Charities Canada, a collaborative of 24 health charity organizations representing the voice of individuals and families impacted by neurological conditions across Canada.

Table of Contents

• Acknowledgements
• List of Tables
• List of Figures
• Executive Summary
  • Impacts of neurological conditions
  • Health services for neurological conditions
  • Scope (prevalence and incidence) of neurological conditions
  • Risk factors for neurological conditions
  • Looking ahead: 2011 to 2031
  • Knowledge gaps
  • In conclusion
• Introduction
  • The aging of the Canadian population
  • The National Population Health Study of Neurological Conditions
  • A synthesis of the findings from the National Population Health Study of Neurological Conditions
• 1. Impacts of Neurological Conditions
  • 1.1 Neurological conditions affect many aspects of life
  • 1.2 Neurological conditions affect children and their families
  • 1.3 Neurological conditions affect First Nations and Métis individuals in different facets of their lives
  • 1.4 Neurological conditions affect informal caregivers
  • 1.5 Looking ahead: 2011 to 2031
  • 1.6 Knowledge gaps
  • 1.7 Key themes
• 2. Health Services for Neurological Conditions
  • 2.1 Individuals with a neurological condition use a considerable amount of health care services across the continuum of care
  • 2.2 Costs of health services for Canadians with a neurological condition are greater than for those without a neurological condition
  • 2.3 Limitations in health care services have been identified
  • 2.4 Canadians with a neurological condition and their informal caregivers typically rate the adequacy of health services lower than do their health care providers
  • 2.5 An obligation is placed on family and friends to provide care
  • 2.6 Information concerning the health service needs for children with a neurological condition is limited
  • 2.7 The health service needs for First Nations and Métis individuals with a neurological condition pose unique challenges
  • 2.8 The prediction and evaluation of health care needs can be informed by Study findings
  • 2.9 Looking ahead: 2011 to 2031
  • 2.10 Knowledge gaps
  • 2.11 Key themes
• 3. Scope (Prevalence and Incidence) of Neurological Conditions
  • 3.1 Determining prevalence and incidence estimates of neurological conditions is complex
  • 3.2 The distribution of neurological conditions and their comorbidities can differ by age and sex
  • 3.3 Building capacity for the surveillance of neurological conditions is well underway
  • 3.4 Looking ahead: 2011 to 2031
  • 3.5 Knowledge gaps
  • 3.6 Key themes
• 4. Risk Factors for Neurological Conditions
  • 4.1 Potential modifiable risk factors for the onset of neurological conditions are being identified
  • 4.2 Genetic factors for the onset of neurological conditions are being identified
  • 4.3 Knowledge gaps
  • 4.4 Key themes
• In Conclusion
• Reference List
• Appendix 1
  • Components of the National Population Health Study of Neurological Conditions
• Appendix 2
  • Glossary
• Appendix 3
  • Acronyms
• Appendix 4
  • National Population Health Study of Neurological Conditions: Implementation Committee
• Appendix 5
  • National Population Health Study of Neurological Conditions:  Scientific Advisory Committee
• Appendix 6
  • National Population Health Study of Neurological Conditions: Synthesis Panel
• Appendix 7
  • National Population Health Study of Neurological Conditions: Stakeholder Engagement Panel

List of Tables

• An overview of the National Population Health Study of Neurological Conditions
• TABLE I-1: Conditions originally considered in the National Population Health Study of Neurological Conditions
• TABLE 1-1: Average number of years in full health lost due to disability and premature death, by select neurological condition and sex, Canada, Microsimulation Project [10]
• TABLE 2-1: Direct health care costs, by select neurological condition, British Columbia (BC), 2010/2011, BC Administrative Data Project [1]
• TABLE 2-2: Average annual out-of-pocket costs, by select neurological condition, Canada, 2011-2012, Microsimulation Project [10]
• TABLE 3-1: Prevalence of neurological conditions, by data source, Systematic Reviews Project [18], BC Administrative Data Project [1], and Canadian Community Health Survey (CCHS) 2010-2011 Project [3]
• TABLE 3-2: Prevalence of neurological conditions among Canadians living in long-term care facilities, by sex, Canada, 2011-2012, Survey of Neurological Conditions in Institutions in Canada (SNCIC) 2011-2012 Project [17]
• TABLE 3-3: Age at onset of symptoms and diagnosis for neurological conditions, by sex, Canada, 2011-2012, Survey on Living with Neurological Conditions in Canada (SLNCC) 2011-2012 Project [16]
• TABLE 3-4: Prevalence of selected chronic conditions among respondents age 12+ years living with a neurological condition (excluding migraine), by sex, Canada, 2010-2011, CCHS 2010-2011 Project [3]
• TABLE 3-5: Projected prevalence, by select neurological condition, Canada, 2011, 2016, 2021, 2026, and 2031, Microsimulation Project [10]
• TABLE 3-6: Projected number of Canadians age 65+ years living with a neurological condition, Canada, 2011 and 2031, Microsimulation Project [10]
• TABLE 3-7: Projected incidence, by select neurological condition, Canada, 2011, 2016, 2021, 2026, and 2031, Microsimulation Project [10]
• TABLE A-1: Neurological conditions and focus areas considered by each project and survey of the National Population Health Study of Neurological Conditions

List of Figures

• FIGURE I-1: Projected population distribution, by age group, Canada, 2011 and 2031
• FIGURE 1-1: General health among respondents age 15+ years living with a neurological condition, Canada, 2011-2012, SLNCC 2011-2012 Project [16]
• FIGURE 1-2: Prevalence of mood disorders among respondents age 15+ years living with a neurological condition, Canada, 2011-2012, SLNCC 2011-2012 Project [16]
• FIGURE 1-3: Prevalence of impaired cognition among respondents age 15+ years living with a neurological condition, Canada, 2011-2012, SLNCC 2011-2012 Project [16]
• FIGURE 1-4: Prevalence of impaired mobility among respondents age 15+ years living with a neurological condition, Canada, 2011-2012, SLNCC 2011-2012 Project [16]
• FIGURE 1-5: Prevalence of pain and discomfort among respondents age 15+ years living with a neurological condition, Canada, 2011-2012, SLNCC 2011-2012 Project [16]
• FIGURE 1-6: Average Health Utilities Index global score among respondents age 15+ years living with a neurological condition, Canada, 2011-2012, Microsimulation Project [10]
• FIGURE 1-7: Prevalence of bladder and bowel incontinence among respondents age 15+ years living with a neurological condition, Canada, 2011-2012, SLNCC 2011-2012 Project [16]
• FIGURE 1-8: Working status among respondents age 18 to 64 years living with a neurological condition, Canada, 2011-2012, SLNCC 2011-2012 Project [16]
• FIGURE 1-9: Projected indirect economic costs due to working-age death and disability, by select neurological condition and age group, Canada, 2011, 2021, and 2031, Microsimulation Project [10]
• FIGURE 2-1: Health service utilization in the past year among Canadians with and without neurological or other chronic health conditions, by health professional type, Canada, 2010-2012, The Everyday Experience of Living with and Managing a Neurological Condition (LINC) Project [9]
• FIGURE 2-2: Formal and informal assistance use among respondents age 15+ years living with a neurological condition (excluding migraine), by type of assistance, Canada, 2011-2012, SLNCC 2011-2012 Project [16]
• FIGURE 2-3: Frequency of informal assistance use among respondents age 15+ years living with a neurological condition (including and excluding migraine), by sex, Canada, 2011-2012, SLNCC 2011-2012 Project [16]
• FIGURE 2-4: Projected number of Canadians who are likely candidates for informal care, by select neurological condition, Canada, 2011, 2016, 2021, 2026, and 2031, Microsimulation Project [10]
• FIGURE 2-5: Projected number of hours of informal caregiving per week, by select neurological condition, Canada, 2011, 2016, 2021, 2026, and 2031, Microsimulation Project [10]
• FIGURE 3-1: Prevalence of Alzheimer's disease and other dementias, by sex and age group, British Columbia, 2009/2010, BC Administrative Data Project [1]
• FIGURE 3-2: Prevalence of parkinsonism, by sex and age group, British Columbia, 2009/2010, BC Administrative Data Project [1]
• FIGURE 3-3: Prevalence of multiple sclerosis, by sex and age group, British Columbia, 2009/2010, BC Administrative Data Project [1]
• FIGURE 3-4: Prevalence of traumatic brain injury, by sex and age group, British Columbia, 2009/2010, BC Administrative Data Project [1]
• FIGURE 3-5: Prevalence of traumatic spinal cord injury, by sex and age group, British Columbia, 2009/2010, BC Administrative Data Project [1]
• FIGURE 3-6: Projected number of deaths, by select neurological condition, Canada, 2011, 2016, 2021, 2026, and 2031, Microsimulation Project [10]