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ARCHIVED: Appendix B: Congenital anomalies surveillance in Canada: results of a 2006-2007 survey on availability of selected data variables in Canadian provinces and territories - Variables and data

Appendix B

Survey of Variables and Data Available for Congenital Anomalies Surveillance

Province/Territory:
Name of surveillance system:

Variable	Version	Format	Source of data	Comments
1. Date of delivery	electronic yes no paper yes no	day and month and year other (specify):
2. Mother's place of residence at delivery	electronic yes no paper yes no	name of Province/Territory health region Standardised Geographic Classification (Stats Can) postal code other (specify):
3. Mother's age or date of birth	electronic yes no paper yes no	years of age at delivery years of age at estimated date of delivery year of birth date of birth
4. Father's age or date of birth	electronic yes no paper yes no	years of age at delivery year of birth date of birth
5. Ethnicity background	electronic yes no paper yes no	mother ethnicity country of birth aboriginal (First Nations, Inuit, Métis) father ethnicity country of birth aboriginal (First Nations, Inuit, Métis) other (specify):
6. Parental socio-economic status	electronic yes no paper yes no	mother education occupation father education occupation other (specify):
7. Prenatal investigations	electronic yes no paper yes no	amnioscentesis ultrasound maternal serum screening other (specify):
8. Place of delivery information	electronic yes no paper yes no	hospital of delivery other (specify):
9. Pregnancy outcome	electronic yes no paper yes no	live birth length of follow up: at birth 7 days 28 days 1 year 1 year and greater dead fetus less than 20 weeks 20 weeks or greater
10. Interruption termination) of pregnancy	electronic yes no paper yes no	spontaneous/miscarriage induced/surgical termination other (specify):
11. Plurality	electronic yes no paper yes no	singleton multiple other (specify):
12. Sex	electronic yes no paper yes no	female male indeterminate unknown other (specify):
13. Birth weight	electronic yes no paper yes no	grams other (specify):
14. Gestational age (best estimate)	electronic yes no paper yes no	completed weeks dates (last menstrual period/LMP) ultrasound clinical examination
15. Diagnosis of congenital anomaly	electronic yes no paper yes no	ICD-9 last year used: ICD-10 first year used: RCPCH (former BPA) text description other (specify)

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2017-07-18

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